Wednesday, March 27, 2019

Anniverary of the first transplant

3 years ago today was Laura’s 1st dbl lung transplant. At this point on that day we had no idea what we were in for. We did know that we were very fortunate to have a donor, the best surgical team in the world and an extremely supportive network of friends and family to support us.

We did send a note to the original donor family. We have not heard from them but cannot thank them enough for their selfless donation at was a difficult time.

We now have multiple lungaversaries to celebrate. As for this adventure we have had a few weeks of check-ups and appointments. In regards to lung function, Laura is at 100%, #CRUSHINGIT!. As always she has be very diligent in her workouts and in all the tasks required to strengthen the new lungs.

The infections are still an issue. We should have results of the bronch this week. Hopefully the mold that was growing out on a suture has died with the months of Ampho. If it is still active, she will continue on the Ampho for another month and we will retest in May.

There were a few more treats in this last visit. The staph infection has come back as has the pseudomonas. There are treatments for both, but both take a great deal out of Laura. The breathing treatments for all three take hours each morning and evening. The side effects are tough as well.

In general all is well. All of the anti-rejection meds are still at very high levels and thus we are not that active. Large groups and small spaces are still to be avoided. Hopefully as we gain control over these current infections and the flu season passes us by the doctors will decrease the levels and Laura can return to her regular routine.

Thank you for the support.

Cheers,
The Z’s