This is our journey of living with Cystic Fibrosis and navigating the wait for a double lung transplant. Our goal is to keep our friends and family aware of what is going on as well as help others who may be in a similar situation. Laura and Amy made a documentary to provide hope for parents, friends and family of other who have CF. Feel free to share and comment. Cheers from our family to yours.
Friday, September 28, 2018
Movin on Up
A quick late update. After a day of testing we moved up again on the list.
Laura did the walking test and spirometry and we do not know the exact numbers of those tests the fact that we now know we have the number 57 means they did decline.
At 57 we are in the mix for a donor. It now becomes a matter of time.
Cheers,
Kevin
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