End of Day One

A great first day.  Laura was a trooper and did a great job. She ended the day with a good walk to take gaze at the ocean and the bay.  Great views from the 10th floor at UCSF!

The entire team has been very impressed with her focus and determination.   They have managed her pain extremely well and she has been very comfortable all things considered.

The process is day to day and we understand that tomorrow may not be as good.  I think today was a great mental win for her.  She did so much work to get here. The PT and other therapy that was proactive, the slow 20 min treadmill walks are paying off.

She is now on the path for 3 walks a day and lung exercises hourly.  CF patients are so diligent in their lives prior to transplant that none of the staff are concerned about her doing the work.

E made a few short appearances throughout the day and is in good spirits.  A few of his friends and his cousins made a surprise appearance and took him to the park yesterday and that made his day.  This evening he and his aunt Kris had a great time cooking and baking.  A lot to manage at 8 but everyone is helping him get through this.

Thanks again for all the support.

Cheers,

The Zs