Thursday, April 21, 2016

What a difference 4 days makes

Since leaving the hospital the wind has been at our back.  Laura has been shedding water weight at the clip of 5 lbs per day for three days in a row.  Absolutely incredible. The decrease is swelling has changed everything. 

The pain has diminished and her mobility is great.  Out in the neighborhood daily walking farther and faster each day.  Today she climbed Belvedere St from Bullah to 17th. 



Her appetite is back for the first time in years.  She has cravings and food sounds and tastes great.  Due the effort that her body had to put into breathing eating was a significant task. To supplement her calories she had to have a G-Tube or gastrostomy tube set years ago. Lots of issue accompany the daily tube feeds and the tube itself can cause rashes and be uncomfortable. The doctors have said in the coming months they will be able to remove the tube from her abdomen.  

As she continues to eat and exercise her numbers are going in the right direction.  Sodium and Iron are improving and her Kidney numbers should improve now that she is off the diuretic. 

As far as pain goes, there still is some pain as expected the Tylenol and Tramadol are effective in minimizing the discomfort.  For the most part the pain is no limited her actions.

We are almost half way through the amphotericin treatment.  This is the treatment for antifungal growth in the lungs.  The treatment is vaporized and takes close to an hour twice a day.  Given that there are three vaporized treatments her throat is raw and sore.  This is a short term issue that will go away soon but still scratchy and uncomfortable.

Thanks to the San Diego crew that flew up for a quick surprise visit.  Lots of effort for a quick visit but well worth it. She had no idea it was happening.

The food is awesome. Thank you all. We are very very fortunate to have so many great friends to help.

Cheers!









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