Wednesday, May 25, 2016

Home Coming Soon

A busy few weeks.  It is amazing to see the progress that Laura has made.  Almost unbelievable at times.  Walking miles a day, up hills and talking throughout the walk/hike. Not once has she stop to catch her breath.

This week was the final week of all inhaled medications. Yeah!!!  Ampho, Cayston and the bunch all done.  Some will rotate in on an every other month basis but for now Laura has over 3 hours of new free time.

There are other medications that they are slowing eliminating as she progresses.  The number of pills that she takes daily is still massive but the continued decrease is welcomed.
We also found out this week that her 4 hour infusion sessions were no longer needed and those appointments were also eliminated.  Lost of time coming back her way.

We are now in house prep mode for her home coming. Apria picked up 13 oxygen tanks, 2 condensers, feeding pumps, poles and a bunch of other stuff.  

It is amazing what has been done to prep the house:
- HVAC cleaning
- Windows inside and out
- New Screens
- Pressure wash and scrub the exterior of the house
- EVERYTHING washed
- New pillows (ALL of them)
- Scrub everything
 Good times :)

Tomorrow we have labs and then with some luck our new normal starts.  We will be at home as a family for the first time in months.   We will be a mobile family again, for the first time in years.  We still have restrictions on driving and travel but we can be very mobile in the bay area.  Over time our radius will expand and after a year we will be set free to travel as we please.

We know that there will be ups and downs and hospital stays will occasionally happen. That will be part of our new norm.  But we had ups and downs before and we had more than our share of hospital stays. But now in between we get to live. 

Your support is amazing!  We could not have made it this far without you all.  

Love  
The Zs


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