A day of testing!

First off, thank you all for the amazing thoughts, actions, prayers... we accept it all with massive appreciation.  It really does make a difference.

Today we had appointments with our normal transplant team as well as a meeting with the transplant surgical team. 

The meeting with the surgeon was a review of Laura's medical history since the first transplant.  This is the final step to hopefully being on the list.  Since Laura was a stellar patient in the first go around the doctors saw no reason that she should not be placed on the list.  Hopefully by weeks end we will be back on the list for re-transplant.

The first meeting with the transplant team discussed her current condition and the continued drop in lung function.  Today she was at 26%, a 4% drop in less than two weeks.  This is very concerning because she needs to be stable to receive a transplant.  After another CT scan today showed pictures that were not good, they admitted Laura into UCSF.  Tonight will be a sleepless night for her as they start her on new IV antibiotics to address the current lung infection and try to control the continued decline.

Tomorrow will entail another Bronchoscopy and biopsies of the nodules that they saw in the scan.  Her last biopsy showed pseudomonas and they have been treating her for that but it is obviously not effective enough.

As we learn more we will keep you informed. 

Thank you again for all the well wishes.

Cheers,

The Z's