This is our journey of living with Cystic Fibrosis and navigating the wait for a double lung transplant. Our goal is to keep our friends and family aware of what is going on as well as help others who may be in a similar situation.
Laura and Amy made a documentary to provide hope for parents, friends and family of other who have CF. Feel free to share and comment.
Cheers from our family to yours.
Tuesday, November 13, 2018
First Call
We received the first call on lungs. Given the five false alarms last time we are cautiously optimistic. If it is a go, they will start the re-transplant this evening. More to come. Cheers!
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Sorry for the issues around commenting, I had the settings wrong. Feel free to comment away!