Dr. Apt and One Republic

Well we are almost done with our 3rd week on the list.  The ring of the phone no longer makes our hearts stop and we are getting back into our normal routine.  Laura did have a Dr. Apt and her lung capacity is now 26%.   Not a surprise but always a bit unnerving to hear.  Go for a walk and breathe though a straw, challenging to say the least.

All candidates have to be very aware of their weight.  A patient may lose 15% of their body weight during/post surgery, so they have to maintain the proper weight prior.  Laura has always had a tough go at this and the only way it has been possible is via tube feeds.  It is hard and has side effects but she is diligent and the effects are great. She is now up to ... (like I would say) The doctors are happy :).  

No big tests in the coming weeks, so back to the wait.  Many of you have asked if you could share the link to the documentary, please do.  We have learned that many co-workers and friends of friends have relatives or friends that have CF.  Laura and Amy wanted to make the documentary show parents and young adults with CF that a  full life with CF is possible. Share away!

Now onto pop music.  Obviously a logical transition.

As I no longer wait for Friday Night Videos or watch videos for that matter, I missed One Republic's latest.  Laura asked if I had heard the song I Lived.  By title I was not aware of the song.  After hearing the track, I was aware of the song but it was usually heard in a car of kids in route to some practice. I had not listen to the lyrics or seen the video.

Laura suggested that we watch the video, so Everett, Laura and I did that.  I have to give One Republic full props for the theme of the video.  I do not want to say too much more, so the link below is to their video.  AWESOME!

I Lived - One Republic

If anyone knows the band, we would love to know the back story.

Thank you again for all of the support, well wishes, prayers and thoughts. It is amazing how lucky we our to have you all.

Cheers,