A better day

After the difficulty of leaving the hospital and then returning, today was a needed good day. 

Getting back to the hospital was no easy task. When Laura did arrive the team was there waiting.  She was quickly settled in and then given some good meds to sleep through the night.  The UCSF team on the 10 Long really does rule!

Today was a better day.  She is now on 15+ liters, which is a significant amount,  and it will increase her LAS (Lung Allocation Score).  She will start Bipap this evening and that should help her sleep better through the night.

A big push is now calories.  Eating is very very hard.  The effort needed for her to eat lunch is equivalent to use running hard for 10 mins. Just spent afterward.  Her recovery time is significant as well.  An hour to two later she is still feeling the effects.  If she can't get to 2000 cals a day she will go on a feeding tube to make sure she has min cals.

Tomorrow is another day to recuperate from the home journey and settle into a routine.   3-4 walks around the floor a day, 2000+ calories, a number of breathing treatments and the usual pokes and prods. 

More to come.

Cheers,
The Z's