Day what?

So the days are all a blend.  Everyday is like the next with nothing significant to differentiate one from another.   If you have ever taken a cruise, you are familiar with the the floor mats in the elevators that tell you what day it is, Sunday afternoon or Wednesday morning.  We need those. The free open bar would be welcomed as well,

The past few days, like others are up and down.  There are moments where she feels ok.  OK is the best we can do, it is not good but not terrible. Between the tube feeds and management of her blood sugars it usually just sucks.  

The waiting is hard and has no end in sight. It could be tomorrow and it could be in 3 months.  Someone with little bedside manner or awareness mentioned that some people have waited 7-8 months in the hospital for a transplant.  REALLY!  Let's have some awareness of the audience people.  The time away is hard enough as is.  To place that kind of timing on it is just brutal.  In reality, that is not likely for us.  

As we wait, we have to again thank ALL the team. They are working for #teamlaura.  When a patient has as many treatments and visits per day as Laura does the patient and their friends and family have the opportunity to know the staff and vis versa.  There are some good stories that are shared that break down any walls ASAP.  The team goes out of their way to do what they can for Laura.  They are part of #teamlauara. Thank you all. From William the garage attendant to the RNs, NPs, Drs, PT, RT, housekeeping.... amazing.

Thank you all as well.  Sunday dinners are great and appreciated as are the carpools, play dates, sleep overs...etc. 

We could not have gone this far without.  

Appreciate it all,
Love the Z's


Please excuse the typos and grammar mistakes, it is late.