Today was a day to get acclimated. Lots of bipap work today with the goal of understanding where her levels are and making sure they can control them. Tomorrow will be more difficult.
In order to control the gases they have to do more adjustments to the bipap as well as the equipment she wears. She currently has a unit that does not cover her mouth. This helps her get over the claustrophobic feels she has while on the machine. The negative to this set up is that the forced air can escape from her mouth. This makes the set up less than optimal. Tomorrow they will try other set ups that include full face masks. This will also be more uncomfortable due to the feeding tube those goes up her nose.
It is important to figure this out because as her lungs continue to fail her need for support will only increase. We hope that we receive the call soon and can bypass those steps.
On another note, KTVU wrote a follow up article on Laura. We did not know the article ran last week. You can read it here.
Cheers to all,
The Zs
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