Some prorgress

At this point we have left good days behind us.  Each day is really hard and ICU has benefits and negatives. 

Physically Laura's lung function diminishes daily and the efforts needed to breathe increase.  More time on the bipap is the solution at this point.  That means that all of the uncomfortable side effects of the bipap are the byproduct of her need to breathe and keep the CO2 levels down. 

The process is also mentally hard.  We are approaching 50 days in the hospital. Poor sleep, stress, questions about next steps, timing are always present.  Everyday is the unknown. Will there be lungs today, if not what will go wrong and how hard will the day be.  No choice but to grind through but it is a grind. 

All that said, Laura is amazing.  A battler, a fighter, a grinder all to the X degree.  I am proud to call her my wife.   She will fight through this.

As far as updates on the day.  The kidney numbers are looking better.  She is down to 1.7 today from 1.9 yesterday. It appears that there was just not enough hydration.  In the next couple of days we should see more improvement and can move past this scare.

Laura also had to complete another six minute walk.  Today she did her third walk in the past 7-8 weeks.  The first was around 600', the second 420' and today she completed 144'.  This walk took 20+ minutes to recover from.  Think about that 144 ft in 6 minutes.  If we extrapolate this (without degradation) it would take her 3.7 hours to run a mile. That means a marathon would take over 4 days.

Thank you again for all the support.  

Love,
The Zs