WOW, Day 25.
We did have a 20 hour break there for one day but that was it. Time blends together now.
Today was a stable day. They took her off of one of the antibiotics that is on a two week cycle. With that gone she can walk with just air and not the pole with bags hanging. It is a welcome break for Laura.
No change in other meds, lung function...etc. Laura is managing the feeding tube and bipap well and hopefully she can rest tonight. A few nights of decent sleep in a row will make a difference.
A calm day.
Cheers to all,
The Z's
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