Into the dog days

We continue to wait.  It is a real grind and each day is very similar to the last and everything gets just a bit harder.  

Laura's has been fighting to keep her weight up and with the addition of the feeding tube has been able to gain a pound.  It is just so hard to keep it on as the energy her body needs is so high.  She is burning calories at a blistering pace. 

With the addition of the tube feeds, the team is trying to control her blood sugars.  Last night they were all over the place and she twice went hypoglycemic. Moving the tube feeds from 12 hours on and 12 off to a consistent 24 hours on may help.

She is continuing to use the bipap machine in the evening and once during the day for a recovery nap. She is still at 15 liters with 25 liters for recovery.  

The photos of the shirts are amazing.  Keep them coming.  A second run is going to be placed so check out #teamlaura for more details.

Cheers,

The Z's