Another Monday

Jumping right into it.  The 24 tube feeds are creating havoc on Laura's stomach. A constant upset stomach that shows no mercy, throughout the day and night. They continue to try other meds to help limit the discomfort and try to figure out a solution that is more comfortable.  In the end, the tube feed is working and helping to stabilize her weight.  She has to maintain her weight to stay on the transplant list. 

We did have a spirometry test today. The last test was on September 11th.  On the 11th her FEV1 was .93 today it was point .53.  Not a big surprise given the increase in her oxygen needs.

I am not sure we have appropriately thanked the UCSF team.  The ENTIRE team on the 10th floor has been awesome.  We interact with dozens of people per day and they really do try to make Laura feel better.  Thank you to all on 10Long who have made the stay as comfortable as possible.

Hoping for a call soon.  Everyone has an opinion we should start a pool. A 50/50 pool for the foundation.

Thank you again for all the support.

Cheers,
Kevin