We are starting to revisit testing. We have been here so long that they are now retesting Laura to establish a new baseline or update her charts. Two of the standard tests are the FEV1 and the 6 minute walk.
The forced expiratory volume test (FEV1) test the amount of air a person can forcefully exhale in 1 min. The measure is a bit confusing when explained that said, on September 11th she had a score of .9, yesterday she blew a .5, this is significant drop. It is no surprise that this has gone down given the situation.
She also did the 6 minute walk, simply, how far can you walk in 6 min. In late September she walked 600' in 6 min, this time it was around 420'. Usain Bolt can rest easy.
These results have increased her number yet again. We are at the top and it just becomes a waiting game for a match.
The tube feeds are still a work in progress. Finding the right amount and the right volume to gain weight while not feeling terrible all via tube feeds has proven harder than expected. Hopefully a solution is found soon and a few nights of good sleep can be had.
Love to see the shirts everywhere. A surreal experience. More news coming on a second run.
Thanks again for all the support.
The Z's
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